Development of telemedicine in Madagascar to improve the daily life of sickle cell anaemia patients

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A story about a Franco-Malagasy NGO and a research laboratory of the Antananarivo Faculty of Medicine who developed an application to build a network of patient care and follow-up.

  • €9,470 Budget in Euros
  • 2020 Final release date
  • 3 Round winner
  • 1 Location

Development of telemedicine in Madagascar to improve the daily life of sickle cell anaemia patients

A story about a Franco-Malagasy NGO and a research laboratory of the Antananarivo Faculty of Medicine who developed an application to build a network of patient care and follow-up.

Sickle cell disease is the most common genetic disease in the world, especially on the African continent. It affects red blood cells and therefore the transport of oxygen in the body. There is still no treatment, the management consists of preventing complications for the patients who suffer from anemia, painful attacks, and increased risk of infections.

In Madagascar, associations and NGOs work with patients, doctors, researchers, and the government to improve the daily life of sickle cell patients. In recent years, the development of telemedicine in certain territories has enabled progress to be made against travel difficulties and economic problems on this island.

By going to Madagascar, this project reports about the work of the NGO LCDM Solimad, created in France in 2008 by a Franco-Malagasy woman, daughter and mother of sickle cell disease, who wants the care in Madagascar to be as effective as the one of her daughter in France. With two other women and doctors, they particularly aim to create a national program in collaboration with the Ministry of Health. The NGO is also at the origin of the DrepanoMRS application, which makes it possible to set up a network for patient care and monitoring.

In this NGO, there are patients, their relatives, health professionals, French and Malagasy. The project tells about this transcontinental cooperation, in which there are also Malagasy researchers working on the deployment of their application in the Lartic research laboratory, at the Faculty of Medicine of Antananarivo.

This application makes it possible to better coordinate campaign doctors and those in large hospitals, to transmit information and results as quickly as possible despite connection problems, and also, among other things, an alert system to avoid ruptured pockets of blood, since blood transfusion is an important tool in the management of sickle cell disease.

The project reports about areas where patients have this telemedicine service, and others where it is not yet available. It documents the daily life with the disease, through the different care paths according to these territories:

- in and around the capital Antananarivo, where telemedicine has enabled the establishment of a network care and exchange of information on patients

- in more remote places, where telemedicine services are not yet deployed, at the center of
reference and proximity care for sickle cell patients in the city in Toamasina in the East, and in Maroantsetra in the North.

This comparison allows to tell the story of the contribution of telemedicine by following patients, health professionals and members of civil society in these different areas.It also allows to tackle the development of pain management and the prevention of vascular accidents thanks to a new neurology center, as well as information campaigns in favor of genetic diagnoses, in particular towards young patients.

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